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Saturday, April 14, 2012

If I had 10,000,000 what would I do for my kid with Autism

I was watching Fast Five the other night (yes, I'm ashamed but Hubby is a car guy so don't judge me). The premise is that they pull off this big heist and each member of team  would get ten million dollars. Very realistic, I know, because anyone in this economy has ten million dollars, yeah. So of course being a bio-medical Autism mommy where does my brain go? I can tell you it has nothing to do with the latest Luis Vuitton purse or shoes (or insert designer bullshit here)! My first thought is that I would purchase a hyperbaric oxygen chamber for treatment of my son. I'm pretty sure that this is not what most people think, but oh well.  Honestly while watching  Fast Five should any woman be thinking about Autism while looking at Paul Walker, Tyresse and the rock?



What would be the next step after that? I could feel my brain reeling. I realized at this point, I don't know. I can say for sure that we've done many, many, many bio-medical interventions with plenty of success. We have a WONDERFUL DAN (defeat autism now) doctor. The problem is we've done everything I've read about: chelation, IVIG, list's of supplements, very strict SCD (Specific Carbohydrate diet) for almost four years. In all fairness we did just start ABA one year ago, which is the best thing next to chocolate but I still have to wonder what could be the next step? We've been so blessed to be able to get great care but I do wonder what is the amount of money that it takes to REALLY recover a child with Autism. Especially when the child is older than say two? My son is doing awesome compared to where we started when he was two and a half. He had one word then, "jew" which was short for juice (not antisemitic slang) and getting that request was like pulling teeth. He is six now and almost seven and we still struggle with different things but sort of the same things, Autism things.

I remember when we first started this journey one of the books I read was "Starving children with starving brains" by Jaquelyn McCandless. She states in the book that she didn't recover her granddaughter. At the time I thought that was nuts. I believed EVERY child with regressive Autism could be recovered especially by someone who had written a book on the subject.

http://www.amazon.com/Children-Starving-Brains-Treatment-Spectrum/dp/1883647177

At this point I've begun to question that belief. Please don't misunderstand, I don't want advice on what to do. I know there are steps will take to continue my son's journey to recovery. Like I previously stated we have wonderful and capable DAN docs. I've read every book in the library and read every thread online regarding bio-medical treatment. I personally believe bio-medical treatment should be a valid form of treatment for every child on the spectrum (along with many other illnesses) of course that treatment being tailored to the child various needs. I'm very well informed on that front. I'm just wondering, even if this world accepted those ideas as treatment for kids on the Autism Spectrum and everyone had the kind of funding the Fast Five heist could provide, would it be enough?

I hate to start my blog off on this cynical foot but this is MY blog and I want a place to practice radical honesty with the topic closest to my heart, Autism.  

2 comments:

  1. Generation Rescue spends an awful lot of time and energy ignoring actual science and promoting an extremely dangerous and damaging anti-vaccine agenda

    That was a quote from this article that is total BS. GR does not have an anti-vaccine agenda, the writer for this article does not do their homework, or they would KNOW that GR is NOT ANTI-VACCINE, they are anti-toxin, and anti-schedule. Do your research before you SPEW your lies.

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    1. I couldn't have said it better Christine!

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