We had J's last chelation this weekend. Seemed significant and blog worthy.
|my first big book of bio-med|
So I went looking for a DAN doctor. Looking up all DAN doctors in the state of Florida, calling for prices, nearly peeing myself at said prices, crying, reading, crying some more. I also began asking for references from other online bio-medical savvy moms. Long story short, we started DAN treatment in November the year of his May diagnosis. One of J's first comprehensive set of labs showed lead in his blood.
"Elevated lead in the body can be detected by the presence of changes in blood cells visible with a microscope and dense lines in the bones of children seen on X-ray. However, the main tool for diagnosis is measurement of the blood lead level or a urine test. When blood lead levels are recorded, the results indicate how much lead is circulating within the blood stream, not the amount being stored in the body. There are two units for reporting blood lead level, either micrograms per deciliter (µg/dl), or micrograms per 100 grams (µg/100 g) of whole blood, which are both numerically equivalent. The Centers for Disease Control has set the standard elevated blood lead level for adults to be 25 (µg/dl) of the whole blood. For children however, the number is set much lower at 5 (µg/dl) of blood as of 2012 down from a previous 10 (µg/dl). Children are especially prone to the health effects of lead and as a result, blood lead levels must be set lower and closely monitored if contamination is possible. The major treatments are removal of the source of lead and chelation therapy (administration of agents that bind lead so it can be excreted).
Humans have been mining and using this heavy metal for thousands of years, poisoning themselves in the process. Although lead poisoning is one of the oldest known work and environmental hazards, the modern understanding of the small amount of lead necessary to cause harm did not come about until the latter half of the 20th century. No safe threshold for lead exposure has been discovered—that is, there is no known amount of lead that is too small to cause the body harm."
So quick paraphrasing, lead is REALLY bad for kids, lead in the blood doesn't actually indicate the toxic burden of the body, chelation is the treatment for lead poisoning, no amount of lead is safe. J's lead was LITERALLY off the charts. His blood lead levels looked like my three year old worked as an automotive soldier for the last fifty years. So we started chelation, that was nearly three years ago.
We've done approximately one IV chelation per month for the last three years. Normally it doesn't take that long but we had to put J's chelation on hold pretty regularly for financial reasons, it should've take about half the time it's taken us to finish. I'll never forget his first chelation. It was a suppository, that was super fun, especially for a kid who was in the early stages of mega colon, getting regular enemas (again, thank you stupid pediatrician). My husband had taken the day off to help me with this lovely task. We had recently moved into an apartment to get away from the lead in our previous house that was poisoning our son. We had planned on going to the pool for a family outing after the dirty business to keep the suppository in and his mind off of it. So we did the dirty deed and finished getting the kids ready to go to the pool. As soon as we got to the pool (of course) the hubby and I got a wiff of J's odor.
|Imagine seeing this in your kids diaper, it ain't lawn art anymore after that|
He had not pooped. His urine just STANK that bad (I even kept the diaper for hubby's inspection). It was another ah-ha/oh shit moment. Each chelation after that we had a similar stench which progressively became less and less pungent. With each chelation we'd see a bit more of J come back, the progress was incremental and slow but sometimes you'd see a jump, a look, a giggle that reminded you what he was in there.
Ironically, when we started our path into the Autism world I wanted nothing more than to walk out and never look back. Now that I have some perspective I think it may be too easy to forget. At this point we are working towards new goals constantly. J became unstuck, able to learn as his body burdens lessened and thus we have the luxury of new goals and forgetting. Now I know, I don't want to forget. Hopefully my son won't scorn me as an adult with Autism for my invasive treatments but if he does at least he'll have the ability to do so. I'll take that scorn for his ability to express himself.